Form 4. Epilepsy Evaluation Checklist



Diagnosis:

  • How confident are we about the diagnosis? Could it be something else?

  • What etiologies are suspected and how are they being further clarified?


    Precipitants and Precautions:

  • What precautions should the patient take to reduce the chances of experiencing a seizure?

  • What should the patient do if a dose of medication is missed?

  • What is the role of stress?

  • Can the patient drink alcohol?

  • Can the patient take herbs or other alternative medicine treatments?


    Tests:

  • What tests are indicated?

  • What are the different varieties of EEG testing and which one is indicated? (e.g. sleep-deprived routine EEG, inpatient video-EEG, ambulatory EEG)

  • Is lumbar puncture or neuroimaging indicated?


    Treatments:


    Medications:

  • Is a medication necessarily needed?

  • Why was this specific treatment selected? What other choices were considered and what are their advantages and disadvantages?

  • What can the patient reasonably expect to achieve by taking this drug?

  • What specific side effects should the patient be on alert for? When should the physician be notified? What precautions can be taken to reduce the chances of side effects?

  • How does the current antiepileptic drug affect my mood? Are there any alternative medication that may help my mood?

  • How long will it take to know that the drug is working?

  • Blood levels: When, why and how medication levels should be checked? Discuss schedule and reasoning behind checking blood counts and chemistries.

  • Is an extended-release form of the drug indicated?

  • What should be done if a medication dose is missed?

  • What will be done if the antiepileptic drug doesn't work?

  • Drug interactions

  • Benefits and deficits of generic vs. brand formulation

  • Cost considerations

  • How long will the patient be on this antiepileptic drug? Can the drug be discontinued?

  • Are there any investigational trials that should be considered?

  • Is the patient compliant with medications?


    Surgery for Epilepsy:

  • Surgical options (e.g., resective surgery, corpus callosotomy, vagal nerve stimulation)

  • Is the patient a candidate for surgical treatment?

  • Where should the patient receive a presurgical evaluation?

  • What does an evaluation for epilepsy surgery entail?

  • What can be expected from epilepsy surgery?

  • What are the risks?

  • What is the vagal nerve stimulator?


    Other Treatments:

  • Ketogenic diet?

  • Do herbal treatments work?

  • Acupuncture and relaxation therapy?


    Prognosis:

  • Will epilepsy be a life-long condition? Will medications be needed for the patient?s entire life?

  • Risks of subsequent epilepsy in children with febrile seizures.

  • What are the chances of recurrence after a single seizure?

  • Is the seizure harmful?

  • If the patient has been recently seizure-free, what are the chances of remaining seizure free? Can medication be reduced or eliminated?


    First-aid:

  • What should the patient or others do if a seizure occurs?

  • Does a seizure recurrence necessarily warrant going to the emergency room?

  • Should the patient inform the physician about every seizure?


    Impact of Epilepsy on Lifestyle:

    The psychosocial complications of disorders like epilepsy are often under-recognized and usually receive suboptimal attention during the typical medical office visit.

  • What activities should be restricted?

  • Can the patient drive? How long does the patient need to be seizure-free until driving is permitted?

  • Does the patient or physician need to report information to the state department of motor vehicles?


    Questions about the psychological impact of epilepsy and its treatments would include:

  • Is there evidence of depression or anxiety? Is further evaluation and treatment indicated?

  • Is there a risk for lowering of the seizure threshold with a specific psychotropic agent that is being administered?

  • Could mood or behavioral aberrations be related to an antiepileptic therapy? Is a revision in treatment indicated because of this complication?

  • Discuss areas of possible sexual difficulties such as fear of intimacy, lack of sexual drive, difficulty attaining erection or orgasm.


    Pregnancy issues:

  • What do we know about the risk of teratogenicity with current or future recommended antiepileptic agents?

  • What is the nature of the potential birth defects?

  • What can be done to minimize the risks of teratogenicity and what precautions can be taken to avoid pregnancy or birth defects in an inadvertent pregnancy?

  • Are there special precautions or treatments applicable at each trimester or when the patients goes into labor?

  • Can the patient breast-feed?


    Additional resources:

  • What additional resources are available to help the patient learn more about epilepsy?

  • What societies or foundations can help the patient by advocating for legal rights, obtaining insurance, and benefits?